Stoneman Syndrome: When the Body Turns to Stone Imagine your muscles and tendons slowly turning into bone — trapping you inside your own body. This is the heartbreaking reality faced by people with Stoneman Syndrome , medically known as Fibrodysplasia Ossificans Progressiva (FOP) . At Hopajuinc , we believe in raising awareness about such rare conditions — not to create fear, but to inspire gratitude, empathy, and the will to support those living with them. What Is Stoneman Syndrome (FOP)? Stoneman Syndrome causes the body’s soft tissues to slowly transform into bone Fibrodysplasia Ossificans Progressiva is an ultra-rare genetic disorder that causes the body’s connective tissues — such as muscles, ligaments, and tendons — to gradually transform into bone . Over time, joints become locked in place , leading to severe, irreversible disability. Even small injuries can trigger bone formation where it shouldn’t exist. Only about 1 in 2 million people worldwide live with thi...
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